Wednesday, May 28, 2-3pm U.S. EST (find this time in your time zone)

Join Sarah Scott, mom to Sammy and Gemma McKee, mom to Molly, for an informal chat about the joys and challenges of being a parent/caregiver to a child with Shashi-Pena Syndrome (ASXL2). Please join us for laughs, stories among friends and maybe a few tears. The goal of this session is to promote connection amongst the Shashi-Pena Syndrome family community.

The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.