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ASXL Dad Chat

Wednesday, May 14, 2025, 8-9pm U.S. Eastern Time (find this time in your time zone): Join this informal monthly discussion led by veteran ASXL dads Bob Walsh, Daniel Ordower, and Justin Wienke about their journey as fathers to children with ASXL related disorders. This is a chance to connect with others who understand the unique challenges and rewards of raising a child with special needs. Share experiences, gain support, and build a community where your voice matters. This call is held monthly on the second Wednesday of the month from 8-9pm U.S. Eastern Time.

The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.

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April 26

Family Forum: ASXL2 Shashi-Pena Syndrome family chat

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June 6

Newly Diagnosed Welcome Call