ASXL Care Directory

The list below is a compilation of doctors, therapists, and other healthcare professionals who have been recommended by families or who have self-identified as having both an interest in and an understanding of treating ASXL-related disorders (ASXL1/Bohring-Opitz Syndrome, ASXL2/Shashi-Pena Syndrome, and ASXL3/Bainbridge-Ropers Syndrome). We hope this list will be helpful to families when trying to find experienced care for their loved ones.

Disclaimer: The recommended healthcare providers in the ASXL Care Directory are recommended directly by families. The ARRE Foundation has not vetted these professionals and makes no claims to their skills, experience, or professional judgement.

Do you have someone to recommend for this list? Submit your recommendation here