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ASXL Rare Research Endowment Foundation
ASXL Rare Research Endowment Foundation
ASXL syndromes
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Bohring-Opitz Syndrome (ASXL1)
Shashi-Pena Syndrome (ASXL2)
Bainbridge-Ropers Syndrome (ASXL3)
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ASXL Rare Research Endowment Foundation
ASXL Rare Research Endowment Foundation
ASXL syndromes
Newly diagnosed
Syndrome overview
Bohring-Opitz Syndrome (ASXL1)
Shashi-Pena Syndrome (ASXL2)
Bainbridge-Ropers Syndrome (ASXL3)
ASXL Resource Library
ASXL Care Directory
ASXL clinics
Research
Enroll in research
Published research
ASXL-Related Disorders Natural History Study
Research we fund
Research Roadmap
Events
ASXL Research Symposium and Family Conference
Webinars and events
Get involved
Ways to give
Volunteer
Fundraise
Giving Tuesday
Awareness days
About us
Who we are
Leadership
Annual report
Partners
News
Join our team
Undiagnosed?
Donate
Folder: ASXL syndromes
Back
Newly diagnosed
Syndrome overview
Bohring-Opitz Syndrome (ASXL1)
Shashi-Pena Syndrome (ASXL2)
Bainbridge-Ropers Syndrome (ASXL3)
ASXL Resource Library
ASXL Care Directory
ASXL clinics
Folder: Research
Back
Enroll in research
Published research
ASXL-Related Disorders Natural History Study
Research we fund
Research Roadmap
Folder: Events
Back
ASXL Research Symposium and Family Conference
Webinars and events
Folder: Get involved
Back
Ways to give
Volunteer
Fundraise
Giving Tuesday
Awareness days
Folder: About us
Back
Who we are
Leadership
Annual report
Partners
News
Join our team
Undiagnosed?
Donate
National Volunteer Week spotlight: Julie Lopez
Volunteers Amanda Johnson 4/20/21 Volunteers Amanda Johnson 4/20/21

National Volunteer Week spotlight: Julie Lopez

Julie Lopez, mom of five kids, including her youngest who has Bohring-Opitz Syndrome, serves as the volunteer lead of the ASXL Professional Network & Research Committee.

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ASXL Rare Research Endowment Foundation

P.O. Box 102
Gorham, ME 04038 U.S.A.
info@arrefoundation.org

The ASXL Rare Research Endowment Foundation is recognized in the United States as a 501(c)3 nonprofit organization. Donations are tax deductible to the fullest extent of the law. Tax ID: 82-3890665

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