ARRE Foundation Research Grants

Requests for applications

Clinical phenotyping of ASXL-related disorders at the 2024 ASXL Family Conference

Due date: January 15, 2024

The ARRE Foundation is accepting research grant proposals for clinical phenotyping of the ASXL-related disorders at the 2024 ASXL Family Conference. The award amount is up to $85,000 to support projects from January 1-December 31, 2024 that center on in-person data collection at the 2024 ASXL Family Conference in Baltimore, Md. from July 18-21, 2024. Projects must be inclusive of data collection and analysis with the intent to publish results.

To apply, please send a brief written proposal including a budget to info@arrefoundation.org by January 15, 2024. A simple format including bullet points is acceptable. The proposal should include:

  • Identification and description of the goals for the grant period, including a timeline for project milestones and deliverables. Please include a target number of participants and anticipated data types to be collected.

  • A description of project collaborators and their roles

  • A description of how the data collected will incorporate the ASXL Registry and Biobank at UCLA

  • A description of how the project will be responsive to the needs of the ASXL family community

  • A description of anticipated challenges, and how the ARRE Foundation can assist in mitigating these challenges

  • A projection of the impact of this project on the published body of literature on ASXL-related disorders

  • Budget and budget justification

Please note that it is the policy of the ARRE Foundation not to support indirect expenses.

Expansion of longitudinal data collection efforts at academic medical centers

Due date: November 15, 2023

The ARRE Foundation is accepting research grant proposals to expand longitudinal data collection efforts at academic medical centers with histories of collecting clinical data on individuals with ASXL-related disorders. The award amount is up to $50,000 to support projects from January 1-December 31, 2024.

To apply, please send a brief written proposal including a budget to info@arrefoundation.org by November 15, 2023. The proposal should include:

  • A description of the existing data collection project

  • Identification and description of the goals for the grant period, including a timeline for project milestones and deliverables

  • A description of how the project will be responsive to the ASXL family community

  • Budget and budget justification

Please note that it is the policy of the ARRE Foundation not to support indirect expenses.

Institutional overhead policy

As a steward of funds raised by families affected by ASXL-related disorders, no ARRE Foundation funds may be used to support indirect costs/overhead expenses. Acceptance of ARRE Foundation funds is contingent upon the recipient and their institution complying with this policy.