You can make a difference by supporting research a cure. Help children with all types of ASXL conditions and start your own Fundraiser.

If you are interested in hosting events, planned giving, or other types of fundraising efforts, please email




Amazon Smile


Amazon donates 0.5% of the price of eligible purchases to the charities selected by customers.

Click on this link to support the AЯRE Foundation:


Facebook Fundraisers



  1. Sign In to Facebook on your Desktop.

  2. On the left, scroll down to Fundraisers and click on it.

  3. Select start a fundraiser for a non-profit.

  4. It will prompt you to select a non-profit. Type in ARRE and it will come up as an option.

  5. Set a $ Goal.

  6. Create a message explaining why it is important to you or use the generic message they give you.

  7. Post it on your timeline.

  8. If it is within a month of your Birthday it will prompt you to start a Birthday Fundraiser.


  1. Click on bottom right icon (horizontal parallel lines)

  2. Click the drop down for "See More" and select Fundraisers

  3. Click on the button "Create a Fundraiser" and choose Nonprofit

  4. Search for ARRE Foundation and then click on Create

  5. Follow steps 5 through 7 above  



It’s quick and easy to create a fundraising page. Click this link and search for ASXL Rare Research Endowment. Continue as a guest user or sign in with a personal account. On the ARRE Foundation page, click on the purple donate button.

For more information and frequently asked questions, click here.

American Express and JustGiving are also allowing Card Members enrolled in the U.S. Membership Rewards® program to use points for donations made through JustGiving.

To learn more about how you can donate your points, click here.