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Learn more about how you can contribute to our endowment with planned giving, which will support our top priorities:

  • ASXL Registry & Biobank: These are foundation tools based on patient data and samples, which researchers will utilize to study and increase our knowledge of these syndromes

  • ASXL Conferences: Bring together professionals and families to deepen our understanding and exchange ideas that will move our mission forward

  • Research Grants: Effective research will bring an understanding of the underlying mechanisms and potential treatments for ASXL syndromes

  • Centers of Excellence: Establish hub hospitals around the world where many ASXL patients will see specialists who will build their clinical expertise and improve patient care plans.

Your donation will have a significant impact for these ASXL families and go directly toward meeting these top priorities. AЯRE is committed to transparency and stewardship of our funding. Below you will find AЯRE Donor Summary.