A picture of approximately 100 individuals who are part of the ASXL family community. They are standing on a sunny rooftop.

Meet, learn & celebrate

2024 ASXL Research Symposium and Family Conference

July 18-21, 2024

Kennedy Krieger Institute
Baltimore, Maryland, U.S.A.

We look forward to welcoming the entire ASXL syndrome community back together in person in Baltimore! This conference includes a scientific symposium for the world’s leading medical professionals and scientists to share their research, a Research Room for families to enroll in critical research studies, and a medical education program for families. Most of all, the conference is an opportunity for everyone in the ASXL community to meet, learn, and celebrate with each other.

Event components

  • A young researcher presents a scientific poster to three people who are listening

    ASXL Research Symposium

    For research professionals

    Thursday, July 18 - Friday, July 19

    The world’s leading researchers and medical professionals gather for scientific exchange.

  • ASXL Family Conference

    For families

    Saturday, July 20 - Sunday, July 21

    Educational programming and networking opportunities for families living with ASXL-related disorders

  • Research Room

    For families

    Thursday, July 18 - Sunday, July 21

    Take an active role in advancing ASXL research by participating in critical research studies

  • Five adults in formal wear use photo booth props and smile at the camera

    ASXL Community Celebration

    For everyone

    Friday, July 19

    Celebrate our incredible ASXL community with dinner, drinks, dancing, and a silent auction

Are you thinking about joining us?

If you’re part of the ASXL family community and thinking about attending the ASXL Family Conference, please take our brief interest survey to help us plan a great conference!

Apply for financial support

  • Four young investigators pose in front of an ARRE Foundation banner

    Travel grants for investigators

    Application deadline: April 15

    Early career investigators and investigators from backgrounds underrepresented in the biomedical sciences are eligible to apply for travel support

  • A young girl plays on a mat while her father watches

    Financial scholarships for families

    Application deadline: March 15

    Families with financial need are eligible to apply for travel support

“The experience was amazing. We were so grateful that we were able to attend.”

— 2022 ASXL Family Conference attendee

A young girl pushing a stroller looks at the camera. She has a bandage on her arm from a research blood draw.