Prepare in advance to make your travel experience will go smoothly. Contact your airline for assistance a few days before your trip. Airlines may have one of their employees meet you and guide you through security. You can also request assistance when you land at your final destination.
Contact TSA Cares (https://www.tsa.gov/travel/passenger-support) for assistance with the screening process and special accommodations.
Make sure that all your medicines are labeled and bring the doctors orders with you, including for g-tube formula. Also, remember to bring emergency medications (e.g. diazepam).
You may want to consider bringing music, a favorite toy, or other items for comfort: https://funandfunction.com/sensory-strategies/travel-solutions.html
Transportation to the Conference Center / Car Rental:
If you are arriving by rental car, the Luskin Conference Center is approximately 12 miles north of Los Angeles International Airport (LAX). Take the San Diego Freeway (I-405) North and exit at Wilshire Boulevard East. Turn right onto Wilshire Boulevard and proceed a half mile to Westwood Boulevard. Turn left and the UCLA Luskin Conference Center, a premier Los Angeles meeting venue and hotel, is located one mile ahead at end of the turnaround.
If you are arriving by Uber/Lyft/Taxi, provide the following address as your destination: 425 Westwood Blvd., Los Angeles, CA 90095
Wheelchair accessible transportation: The following companies provide wheelchair accessible transportation services to and from the airport. It is recommended that you call in advance for transportation arrangements and rates.
Bell Cab: www.bellcab.com
B&W Limo: firstname.lastname@example.org or 818-599-0438
Driving Directions & Transportation Options: https://luskinconferencecenter.ucla.edu/about/campus-map-parking/
UCLA has graciously offered to split the cost of hotel rooms for our ASXL families at a rate of $124/night. Check in time is 4pm and check out time is 12pm/noon.
This rate will be available for July 26th through July 28th. If you plan to extend your trip, you can receive a semi-discounted rate of $249 on July 25, 29, & 30th. To book any additional nights outside of those dates, please contact the Luskin Conference Center Reservations team at 855-522-8252.
The Luskin Conference Center hotel has reserved accessible/ADA rooms for guests. If you have additional needs for roll-away bed ($30/room/night; only available for King bed rooms), crib, extra pillows, or other needs, please submit them with your request or contact AЯRE for assistance. The hotel has vending machines available on each floor and families can reserve a refrigerator for a fee ($20/room/night).
The hotel does not have general laundry facilities available to the public, but guests of the hotel can send items out to be laundered from their rooms. If laundry is put out by around 9am, it should be returned to the guest room around 4-5pm.
The conference center where the ASXL Research Symposium is being held is within the hotel.
On Friday, July 27th, 2018, there will be a complimentary buffet lunch from 12-1pm for all speakers and families at the Conference Center. Please register with your preferences for this event by July 6th. http://bit.ly/asxlconferenceregistration
On the same evening, there will be an informal “Bring Your Own” (BYO) dinner for families on the UCLA campus. We will also provide the option to order take out from a local restaurant (e.g. In & Out Burger). More details will be provided at a future point in time via email.
The UCLA Medical Center campus has a cafeteria that is available for other meals. The hotel has a restaurant, Plateia (http://plateiaucla.com), which is open to the public. There are also dining halls in the on campus housing and the Ackerman Union, which has a variety of eateries as well. https://www.uclahealth.org/reagan/dining-commons
The UCLA Bookstore carries small sundries and a grocery section. A few blocks into Westwood Village, there is also a CVS, Target, & Trader Joe’s.
Los Angeles July weather averages between 81-86 degrees Fahrenheit / 27-30 degrees Celsius during the day and falls to 62-66 degrees Fahrenheit / 16-19 degrees Celsius in the evening. Please note that these are averages so temperatures may climb to the high 90s – be prepared. Remember to use sun protection (e.g. sunscreen, hats), and stay hydrated to reduce any medical risks.
Things to do in Los Angeles
Shopping and Dining: Westwood Village is within a 10 minute walking distance from the Luskin Conference Center. It is an authentic Los Angeles neighbourhood that offers several opportunities for shopping and dining. https://luskinconferencecenter.ucla.edu/about/discover-los-angeles/
Please feel free to contact AЯRE Foundation at any time if you have any questions or concerns. We are thrilled for you to be part of our inaugural AЯRE Conference and look forward to meeting with you in July!