2019 ASXL Conference - AGENDA

icon clinic.png

Friday, July 19th

2019-07-18 Friday fam day.png

Professional Day (for Scientists and Researchers; Families are optional) at the Biomedical Science Research Building, University of Michigan, Ann Arbor Campus

2019-07-18-02 Friday prof day.png

family professional day.png

Saturday, July 20th

Medical Research & Family Day at the Hilton Garden Inn, Ann Arbor

Special Guests - THERAPY DOGS!

Biobanking & Registries

  • Simons VIP & ASXL Biobank - sample collection

  • ASXL Registry enrollment

Note: Simons will be creating a video during the conference and families can participate! They will ask questions about the process to obtain a diagnosis, finding a community, and the patient experience.

FaceBase Enrollment

2019-07-18 Saturday medical fam day01.png


  • Catered lunch for families and professionals

  • ASXL Family Dinner at Revel & Roll

    • Wheelchair accessible transportation and food will be provided at no charge

    • Adaptive Bowing & Arcade!


family fun day.png

Sunday, July 21st


2019-07-12 Sunday.png


2019-07-18 Friday prof day speakers.png
2018 Conference.jpg