2019 ASXL Conference - AGENDA
Friday, July 19th
Saturday, July 20th
Medical Research & Family Day at the Hilton Garden Inn, Ann Arbor
Special Guests - THERAPY DOGS!
Biobanking & Registries
Simons VIP & ASXL Biobank - sample collection
ASXL Registry enrollment
Note: Simons will be creating a video during the conference and families can participate! They will ask questions about the process to obtain a diagnosis, finding a community, and the patient experience.
Catered lunch for families and professionals
ASXL Family Dinner at Revel & Roll
Wheelchair accessible transportation and food will be provided at no charge
Adaptive Bowing & Arcade!
Sunday, July 21st
SUNDAY FUN DAY!
Fun activities for families at Washtenaw County’s County Farm Park with ADA (Americans with Disabilities Act) accessible playground
Start 10:00 a.m.