AЯRE 2019 calendar

  Pre-order your 2019 calendar today!

Pre-order your 2019 calendar today!

LIMITED TIME OFFER

15% off in November!

All who donate $25USD or more during the month of November will receive a beautiful 2019 AЯRE Foundation Calendar.

From December 1, 2018 through January 31, 2019, anyone who donates $30USD or more will receive the 2019 calendar.

If you would like to include any pictures for the 2019 calendar, please complete this permission form and upload your photos NLT November 14th. For any questions, please contact info@arrefoundation.org.

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Donors who give $75+USD or more also will receive this awesome T-shirt!

Donate Now

Click Donate Now to order your 2019 Calendar today! Please fill out the tab Additional Information with the address where you would like your calendar shipped and your preferred t-shirt size (if applicable). Thank you!


THANK YOU to all of our donors for your tremendous support! Your contributions go toward conferences, the ASXL Registry and biobank, research grants, and supporting services.

2018 Highlights:

  • Facilitated the inaugural ASXL Research Symposium at UCLA with 18 families in attendance and 8 speakers from major universities and hospitals

  • Hosted a medical clinic for ASXL families to meet with geneticists and discuss their children’s challenges

  • Enrolled families in the ASXL Registry and collected 30 samples for our biobank, which will be accessible for researchers

  • Received 2 proposals to expand and sustainably support the ASXL Registry & Biobank and for ASXL research and discussed 4 additional research proposals in queue with other major universities & hospitals

  • Provided informational articles and created community via social media channels

  • Opened ASXL file with the Precision Medicine Institute at UAB

  • Recognized as a 2018 Top Rated Great Nonprofit and earned GuideStar Gold Status

2019 Plans:

  • Facilitate 3-day ASXL conference, July 18-20, 2019, at the University of Michigan with expanded researcher discussions, medical clinic and biobanking, research studies, and informational workshops for families

  • Expand the ASXL Registry & Biobank and onboard an ASXL Research Coordinator

  • Establish an endowment to sustainably fund research grants and conferences

  • Approve clinical and basic scientific research grants to major universities and hospitals